Help us find Mighty Max his

miracle medical team!

One share. One name. One connection.

It could help save his life.

A Family’S PLEA:

HELP US FIND MAX'S TEAM

We currently live in Oklahoma, but we will travel ANYWHERE if it means hope.

Right now, my Seven year old son's care is split into pieces. His heart doctors work to save his heart, and his brain doctors work to save his brain - but Max is just one little boy, and his body is fighting all of it at once. Because of his rare diagnoses, and life-long blood thinners, every Brain complication puts his Heart at risk. Every Heart complication puts his Brain in danger.

We cannot navigate this alone anymore. I have sent hundreds of emails and made dozens of calls. We are desperately searching for a medical facility that sees our whole boy. I have every raw medical record since his birth but have no issues signing a release if we think its a good fit.

We are praying for a miracle team : we know it’s out there.

HIS HEART

(Cardiology & Cardiothoracic Surgery)

  • Shone’s complex/variant

  • Parachute mitral valve

  • Mechanical mitral valve replacement (requires strict life-long blood thinners/anticoagulation)

  • Hypoplastic aortic arch

  • Coarctation of the aorta

  • Bicuspid aortic valve

  • History of Supraventricular Tachycardia (SVT}

HIS Brain

(NEUROLOGY & NEUROSURGERY)

  • Hydrocephalus requiring Ventriculoperitoneal (VP) shunts and multiple revisions

  • Craniosynostosis requiring cranial-vault reconstruction

  • Seizures and treatment for major neurologic complications

  • History of multiple complex brain and skull surgeries

Major surgical Events

  • October 2018 | Aortic Arch Reconstruction (First Open-Heart Surgery)

  • November 2018 | Gastrostomy Tube (G-Tube) Placement

  • December 2018 | Ventriculoperitoneal (VP) Shunt Placement #1

  • March 2019 | Cardiac Catheterization with Balloon Dilation of Recurrent Coarctation

  • May 2019 | 2nd VP Shunt placement

  • March 2020 | Mitral Valve Replacement (Second Open-Heart Surgery)

  • March 2020 | Cardiac Catheterization

  • October 2020 | Removal of Gtube!

  • May 2021 | Cranioplasty (Aborted after condition deteriorated during surgery, Hypoxic)

  • May 2021 | Bilateral VP Shunt re- Placement

  • July 2021 | Scalp Incision and Drainage / Granuloma Removal

  • September 2021 | Cranial Vault Reconstruction for Craniosynostosis (successful)

  • August 2023 | Left VP Shunt Revision

  • June 2026 | Mechanical Mitral Valve Re-Replacement (Third Open-Heart Surgery)

SPREAD THE WORD

SPREAD THE WORD

Have a medical lead?

Want to support our journey?